Round 1 – Seven days after

It’s a week since my last infusion. Continue reading “Round 1 – Seven days after”


Round 1 – Aftermath (3 days later)

The weekend I spent in a state of utter exhaustion. If I were a mobile phone, I would have been on 2% battery Saturday, rising perhaps to 5% on Sunday.

The emotional rollercoaster of steroids continued unabated, which is just as well because the adrenaline from being upset and pissed off was the only thing keeping me going. I spent quite a lot of Sunday morning lying in bed and trying to decide whether I had the energy to pack a bag and call a taxi, and where I would go if I ran away, and whether it was worth the bother of taking the kid with me… Continue reading “Round 1 – Aftermath (3 days later)”

Round 1 – Day 4

10.30am – no steroids today so I had my antivirals and paracetemol at home and got to hospital for 9am. (No need to rush in as the alemtuzumab isn’t available until the hospital pharmacy opens at 9am…) Plugged in with antihistamine and alemtuzumab by 10am. Two goes to get the cannula in again, on my left hand today as the right hand is already covered in holes and bruises. 😦

It would be fair to say that the theme of the day has been Continue reading “Round 1 – Day 4”