It’s a week since my last infusion. Continue reading “Round 1 – Seven days after”
Several weeks ago, I started the process of getting myself back on the road. I thought – naively, as it turns out – that this would be relatively straightforward. Continue reading “Getting my life back: driving”
The weekend I spent in a state of utter exhaustion. If I were a mobile phone, I would have been on 2% battery Saturday, rising perhaps to 5% on Sunday.
The emotional rollercoaster of steroids continued unabated, which is just as well because the adrenaline from being upset and pissed off was the only thing keeping me going. I spent quite a lot of Sunday morning lying in bed and trying to decide whether I had the energy to pack a bag and call a taxi, and where I would go if I ran away, and whether it was worth the bother of taking the kid with me… Continue reading “Round 1 – Aftermath (3 days later)”
Day 5 went pretty much the same as Day 4, starting with all the same pre-meds plus my anti-biotic which is due three times a week.
Experiences of note include Continue reading “Round 1 – Day 5”
10.30am – no steroids today so I had my antivirals and paracetemol at home and got to hospital for 9am. (No need to rush in as the alemtuzumab isn’t available until the hospital pharmacy opens at 9am…) Plugged in with antihistamine and alemtuzumab by 10am. Two goes to get the cannula in again, on my left hand today as the right hand is already covered in holes and bruises. 😦
It would be fair to say that the theme of the day has been Continue reading “Round 1 – Day 4”
12pm – it’s all becoming rather routine at the moment. Antibiotic and antiviral this morning at home. Arrived just after 8am, steroids and paracetemol, then piriton and alemtuzumab flowing by not long after 9.30. Took two goes to Continue reading “Round 1 – Day 3”
10.15am – Got my corner seat again – decided I’d rather have a window and suffer the heat later than sit in the middle of the room. So far, the room seems less busy this morning but the nurses think it will get busier later. Anyway, I’ve already had Continue reading “Round 1 – Day 2”