Neurologist o’clock

I’ve completed the 5 days of steroids, and so far there is no change to my vision. My fabulous MS nurse (who I saw for steroids on Monday afternoon) got me in to see the neurologist for Friday morning.

It isn’t as though there is anything to do but wait, but the grownup doctor wanted to make sure we rule out other possible causes rather than assuming that hoofprints always mean horses – because zebras do exist, right?

Anyway, he had a good look in my eye and confirmed that everything he could test was definitely consistent with an MS-related bout of optic neuritis, but he’s going to get an MRI done and an ophthalmologist to check me out, too – just in case.

I did my Month 7 bloods while I was there, so that was something else concrete achieved out of the visit. The doctor also showed me a graph of my lymphocytes since last July which was fun.

It’s comforting to know that they don’t muck about with something as scary as blindness. Even blindness in one eye only is surprisingly debilitating. I have no depth perception, which means doing anything takes a lot more concentration. Focusing on things long enough to read is exhausting, which rules out being remotely useful at my job. Crossing roads is terrifying, and of course both driving and cycling are completely out of the question.

To get to the appointment, I had to walk for 20 minutes through proper snow, and catch a bus to an unfamiliar hospital (urgent appointment, can’t be choosy about venue). By the time I got home, I had nothing left. So why do I feel like such a wuss that all I want to do is stay at home watching Netflix and feeling sorry for myself?!



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