I went to see my MS nurse yesterday for my first check-up after treatment, and to kick off my monthly monitoring. Continue reading “First monthly checkup”
Day 5 went pretty much the same as Day 4, starting with all the same pre-meds plus my anti-biotic which is due three times a week.
Experiences of note include Continue reading “Round 1 – Day 5”
10.30am – no steroids today so I had my antivirals and paracetemol at home and got to hospital for 9am. (No need to rush in as the alemtuzumab isn’t available until the hospital pharmacy opens at 9am…) Plugged in with antihistamine and alemtuzumab by 10am. Two goes to get the cannula in again, on my left hand today as the right hand is already covered in holes and bruises. 😦
It would be fair to say that the theme of the day has been Continue reading “Round 1 – Day 4”
12pm – it’s all becoming rather routine at the moment. Antibiotic and antiviral this morning at home. Arrived just after 8am, steroids and paracetemol, then piriton and alemtuzumab flowing by not long after 9.30. Took two goes to Continue reading “Round 1 – Day 3”
10.15am – Got my corner seat again – decided I’d rather have a window and suffer the heat later than sit in the middle of the room. So far, the room seems less busy this morning but the nurses think it will get busier later. Anyway, I’ve already had Continue reading “Round 1 – Day 2”
Arrival 8am. I’m here! The chair is comfy and by arriving early I have bagged a window seat so I have a tree and some sky to look at 🙂 Continue reading “Round 1 – Day 1”
The MS nurse called me back to confirm the antibiotics definitely start two weeks before alemtuzumab, despite what it said in my letter… Ho hum. Different hospitals seem to have different protocols but from what I can gather it doesn’t matter a lot, so I will obediently begin on Monday. It’s all getting a bit real!